Tag: Neurofibromatosis
-
What Gives Me Life
For those of you who know me and have followed my journey for awhile know my personal struggle with the genetic disease called Neurofibromatosis. To those new to my journey, it is apparent when looking at a photo of me that something is different. This post is about living with Neurofibromatosis type 1 (NF1), and […]
-
On Disfigurement and Grace
I stepped off the light rail into the damp afternoon air. I craned my neck, looking for a friend, when a man who had been in the same train car from downtown Portland approached me. We hadn’t spoken on the ride. In fact, I had been listening to my “Lent” playlist on my iPod, lost […]
Megs the Wanderer 